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Post by pod 7 on Dec 15, 2011 12:08:33 GMT -5
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Post by Forever Sunshine on Dec 15, 2011 16:29:30 GMT -5
Well, at least something on me is smart!   
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Post by snerdley on Dec 15, 2011 19:18:31 GMT -5
I had a bad bout with Lyme's disease that resulted in a Chronic Fatigue syndrome/fibromyalgia. I was absolutely knocked flat on my back in a bad way. And, i disagree that it is just all in one's head. I was able to function enough to maintain my job and that is about it. I had to let everything else slide just to get by. I literally got up and went to work and came home and went back to bed and could do little else for quite awhile. Over time this eased up and in the last few years i have been fortunate to regain alot of the the energy and strength though i ain't what i used to be. I feel extremely blessed and fortunate that this did not ruin my life or cause me to spiral down the drain. Had i not had family support and a decent financial situation, i could easily have wound up living under a bridge. I can see how such things overtake and ruin people's lives. 
Gaga---I sympathise with you 100% my daughter also suffers with your condition as well-so i DO know what you are talking about, she used to be such a lively outgoing type of girl, but as you well know--not now its taken hold,and unless you talk to a person that knows about it they assume that its an excuse to lay in bed when it gets really bad--so i do know what you are talking about--my heart goes out to you------as you most probably know people come up with all sorts of relief from the pain etc Dark chocolate comes to mind as one of them---her partner has come up with some sort of thing (my brain has forgotten) she says hopefully it appears to have helped her pain--we thats the wife and i can see it appears to be helping her--but as you know with this what works for one--not necessary for another--if you like i can find out for you to pursue & see if it will give you any relief
Thanks for the comments. But, fortunately, things have drastically improved. But, what happens is that eventually you just give up because it either seems no one believes you or if they do, then they don't know what to do for you. And, there is really no answer anyway other than trying to find ways to manage your life. And, i just tried to stay the course but became a shell of the person i was for a long time. And, for a long time, i blamed myself that maybe it was my fault, that maybe i wasn't trying hard enough and on and on. But, then i had to look at the reality of why would someone who is doing well sabatoge themselves? I didn't. And, i realized that it wasnt my fault and that if people don't "believe" in chronic fatigue or other illnesses, then too bad. And, that i had to take care of myself and family foremost and let other things go. Over time things have dratically improved and now i am doing great, exercising and getting back to a fun enjoyable life. But, i can be thankful that i did recover and i can also empathize with people who are in the midst of a bad situation and understand that they need a helping hand and not a kick in the teeth. |
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Post by roygrip on Dec 16, 2011 7:32:50 GMT -5
I'm a type 2 Diabetic and suffered the "Flesh Eating Bacteria" The surgery to save my life took away certain muscles in my right arm. I was sliced from arm pit to fingers, then back up the other side from fingers to shoulder. So nerve damage, and limited mobility of use of right arm. My job in the studios is very physical, so I learned to compensate and cope. There are certain aspects I can't do. Luckly I'm a boss, now, so I get to point alot ;D
The Diabetes is certainly weight related, since I got sober over 10 yrs ago, I've gained 80 pounds, It doesn't come off easy, I loose 25, and gain 20. 
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Crap, the Name Escapes Me 
